Patient Engagement
The need for early involvement of the patient in the cycle of drug development is widely recognised.
Committee
Advisory Board Committee to be announced later.
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ISoP SIGs
Patient Engagement Group
Empower Patients to Enhance Safety
SIG Webinar
Patient Engagementās pivotal role in enhancing the safety of healthcare services is ever-evolving.
20 May 2023 | 18:00 CET
Our Advisory Committee shares their different perspectives about patient engagement and introduces you to our group, our vision, and future plans.
This webinar is for members. If you are not a member of ISoP and would like to attend this webinar, please visit our āHow to Joinā page and join us!
Background
There is large interindividual variability in drug response. Some of the variation is related to inherited characteristics of the genome. These genomic variations may relate to pharmacokinetics (PK) or pharmacodynamics (PD) or to individualās susceptibility.
- Lack of understanding of the disease condition and the treatment choices by the patients
- Ineffective communication between HCPs and the patients
- Limited collaboration between the pharma industry, regulatory and the patients or their representatives, which led to inactive listening to the patientās needs and challenges
There is an urgent demand to work closely with the patient organizations to enhance the listening to patients, understand their challenges, and the importance of adherence to the treatment plan; consequently, patients will be able to avoid medication errors, manage the disease and reduce the adverse events incidents.
In addition, it is essential to help the patient organizations to leverage the knowledge of the patient on how to accept and manage adverse events rather than try to avoid them. Thus, we need to establish a transparent channel of communication between the patients and healthcare professionals, the pharma industry, regulators, and research institutions.
There is a big demand to enhance the communication between the patients and healthcare professionals, especially in LMICs.
Thus, ISoP Patient Engagement Group (ISoP PatEG) is needed.
The ISoP Patient Engagement SIG was formally launched during the ISoP General Assembly at the 20th annual meeting of ISoP in November 2021.
Vision
Enhance the core role of patients in medication safety.
Mission
- Help shape the future of the patientās involvement in therapeutic decision-making safety surveillance and safe use of medicines
- oster appreciation of the patient contribution to medication safety and spread examples across stakeholders
- Support knowledge networks and independent patient representation in medication safety systems
- Advance patient involvement in development of policies and guidelines to enhance medication safety
Guidelines on how to be a member/representative in ISoP PatEG
- ISoP member for more than three years
- Passion about supporting the patient utilizing different tools and channels
- Have a connection with the patient organizations/societies in the country or the region affiliated to
- If you would like to join the group, please submit the application form below to evaluate the eligibility criteria: https://my.forms.app/form/6197c0af7d2e520c5414b674
Leaders of the group are:
Dr. Mayada Alkhakany
Dr. Manal Younus
isoppatienteg@gmail.com
Advisor Board Committee to be announced later.
Follow us on social media:
https://twitter.com/PatientegISoP
https://www.facebook.com/ISoP-Patient-Engagement-Group-103127862204528/
https://www.linkedin.com/company/isop-patient-engagement-group
Would you like to join or learn more about this group? Contact us at administration@isoponline.org
